Introduction
Sundowning is a term used to describe a behavioural change in a person who is living with dementia. Sometimes, these changes in behaviour can be challenging for the carer, or perhaps for the care home staff, because they can come on quite suddenly and not always at the same time of the day.
The reasons for sundowning are not fully known, but within this post we will break down some of the reasons why people may experience sundowning, and discuss the impact it can have on those living around them.
It is worth quickly noting that not everyone with dementia will experience sundowning, there are over 100 types of dementia, every person is different and dementia affects people in different ways.
So, why does it happen?
According to The Alzheimer’s Society, sundowning can occur at any stage of a person’s dementia journey, but is perhaps more likely to manifest in the mid to latter stages. Reasons for sundowning can vary, but the charity note the following reasons on their website:
• tiredness, hunger, pain or other unmet physical needs
• not enough exposure to sunlight during the day
• overstimulation during the day, such as from a noisy or busy environment
• disturbance to the person’s ‘body clock’ caused by damage to the brain
• disturbed levels of hormones that vary over the course of the day
• sensory impairment, such as hearing or sight loss
• tiredness in other people causing the person with dementia to become upset
• mood disorders, such as anxiety or depression
• fewer carers around to look after the person (in a care home)
• side effects of prescribed drugs.
As you can see the reasons a person may experience sundowning can be very varied, and although the term sundowning suggests these changes happen in line with the setting of the sun / ending of the day these changes can happen at any time, although more cases do occur during the afternoon compared with the morning.
What happens when a person experiences sundowning?
When folks experience sundowning their behaviour changes, for some people this can lead into moments of high anxiety, confusion, agitation, delusions, or hallucinations. This not only is distressing for the person, but this can have a huge impact on the primary carer who then experiences their loved one in this dreadful state, making it both physically and mentally very draining.
During my time in care homes, I have seen many examples of residents who are sundowning; sometimes this can go on into the night which further complicates the persons night routine, making them tired and potentially more agitated the next day.
Equally, sometimes the behaviours can pass after a shorter period and although the latter is of course preferable, it still does not make it easy for the person, or their carer, to go through.
At the extreme end, some people who experience sundowning can become violent through their confusion, and this can present a very big problem to the persons family. To start, this behaviour may be too risky for the family and they may seek a care home placement, however care homes are not always inclined to accept a person who is expressing violent behaviour due to the safety of the other residents.
If you are in a position where a loved one is becoming aggressive during periods of sundowning, it would be advisable to request an urgent referral to the Older Persons Mental Health team who can be accessed through your GP.
Ways of reducing sundowning
Reducing sundowning is unfortunately not an easy fix; with so many different variables that can cause a person to experience sundowning, it takes some very close attention to detail to try and understand why. However, if you can determine the reason then measures can potentially be put in place to reduce the risk or perhaps the severity. Below, there are a few things that you can consider:
• If the person is tired, is there a new night routine that could be introduced, included the use of a weighted blanket to help the person to sleep. Use of a therapeutic lap blanket may also help during periods of sundowning.
• Medication – is the persons pain relief being affectively managed? Do they, or their carer, need support with this?
• Overstimulated - this is an interesting one, I am a big believer that we should work hard to ensure folk with dementia are stimulated, but there is a delicate balance and sometimes too much stimulus can simply overbear a person living with dementia. Reducing stimulus in the afternoons could therefore potentially help the person.
• A bad experience that day – in all my dementia training one thing remains constant, that is that ‘the feeling lasts longer than the memory.’ This means a person with dementia can still have a bad day, or be sad, they may just not know why. Trying to reduce these experiences and keeping the person in a positive mindset could therefore be an effective way of reducing the risk of sundowning.
• Sensory impairment – getting regular hearing and vision check-ups are important and may reduce the risk of sundowning. Hearing loss can also be linked to memory loss, so using appropriate hearing devices are also an important element of dementia care.
Conclusion
Sundowning can be a very difficult element of the dementia journey and can cause carers to not want to go out due to the fear of dealing with the behavioural changes outside of the house, leading to further isolation of the carer. In the extreme, it can also lead to high anxiety for the carer and a potential challenge when finding a care placement.
If you are concerned about a loved one who is sundowning, its best to approach your GP for a referral to Older Persons Mental Health as well as trying some of the tips highlighted in this post, but ultimately getting advice from professionals and those around you will help. Do not let the stigma get in the way of speaking with someone about sundowning…
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